Assalamualaikum and hi all.
It’s been a hectic week last week. Adriana is doing great
and shows a lot of improvements. Her seizure is getting better, under control.
Once time a day, just a minor attack during night only. So during days, she
usually wakes up in the early morning around 6-7am but she will fall asleep
back. She knows her daily routine, watching television food channel, chatting,
playing, therapy, and so on.
Yana is supposed to undergo her second ophthal surgery on
early January 2016, but the surgery has been rescheduled so many times. The
ophthal specialist, Dr Azura is a really helpful doctor and gave the earliest
date which is to be scheduled on 1st November 2016. I pray
everything is going to be okay. Her condition must be in good health,
especially the seizure. If still have quite number of attacks, the surgery may
need to delay again. I don’t mind, honestly, if that’s the best for her.
So during our last ophthal appointment in Selayang Hospital
on last June, Dr Azura told us a news, I’m not sure whether it’s a good or not,
but we can give it a try. She explained about Silicon Blend Expander, which is
a new technology that never been tried in Malaysia. She asked me if we were agreeing
to try, and I said okay. Why not give it a try if does not harm Adriana.
She explained the procedures, putting the silicon prothetic
eye, and every year from time to time she will monitor and inject at the nerve,
which does not require surgery every year to change the prosthetic eye. So this
silicon prothetic eye will be permanent for at least 3-5 years. Adriana is only
need an injection instead of undergo every 1-2 years of surgery.
Previously, on 4th May 2015, Adriana was admitted
at Selayang Hospital and the next day on 5th May, underwent her
first prosthetic eye surgery. Her left eye is not formed and need to put a
prosthetic in order to acknowledge the facial bone that there’s an eye in the
globe. At that time, Yana was very chubby around 10-11 kilograms I guess and
it’s very difficult to find an IV line.
When she was 1year 1months old, almost 10-11kg. This photo taken after the admission. Everybody asked me what did i feed her until she become like Michelin. haha. She breastfed almost all the time until 2 years old.
By hook or by crook, the anaesthetics team need to find at
least an IV line. I was there in the operation room and saw they inject here
and there, both right and left hands but couldn’t find any. Until they inject
both right and left foot, still couldn’t find the line. At the end, Dr Azura
and all the anaesthetics team agreed to do local GA. Later, they asked me to
wait outside the operation room. I prayed hard. Hoping everything is going to
be alright. She will be fine. I know my little angel is a strong girl.
Suddenly after 10 minutes, I saw Dr Azura came towards me
and said it’s done. My first word was Alhamdulillah. Then she explained,
actually the operation did not go well. They couldn’t make it as they have
planned. The speculum and moulder is bigger than her left eye. Because her left
eye is very small and sunken, the moulder couldn’t place into it and
ultimately, Dr Azura has to change her plan. Just put a ready-made prosthetic
eye into her left globe. That’s the best without hurting Adriana which was in
half-conscious during the surgery.
After the surgery.
The best thing is when Adriana was allowed to discharge
after few hours of the surgery. Since there’s no IV and drip line, Adriana was
in good condition. A very strong daughter when everybody else cried like a
tsunami. At that moment, I realized something wrong. The surgery triggered seizures.
She had like more than 20 times of seizures attacked and I worried so much. The
doctor said, just monitored her at home and if the seizures getting worse, immediately
rush to the nearest hospital for emergency.
An hour after the surgery, she woke up and gave us a smile. "I'm fine, mama."
Fortunately, at home, later during night she falls asleep
due to tiredness. The next morning, on 6th May 2015, she woke up
early in the morning like usual, feeling very different. Her facial and body
language has changed. It’s like “I feel so different! I have a new eye! It
feels so amazing!” Maybe still feeling a
bit weird of the new changes, Adriana finally managed to adjust herself with
her new prosthetic eye. She became a happier girl. It’s like a reborn. She feels
like starting a new life.
Three days after the surgery, she tried to open her left
eye. I was touched. I cried. It’s her first time opened her left eye. I snapped
few pictures and sent it to Dr Azura. She prayed for us. I thanked her. I
thanked God for everything. Adriana really changed and became more talkative as
if trying to tell her joyful feelings. I looked at her both eyes with mixed
feelings. I know her vision is quite blur, poor vision, but I always and keep praying
that, at least she can see us, family. If not destine in the world, maybe in hereafter,
in Jannah.
The first time moment she opened her left eye.
I know she’s born imperfectly, but in the heaven, in Jannah,
she will be a perfect girl with beautiful eyes, can see us, able to stand up,
walk, talk, smile and laugh. Because she’s born to be an angel. My forever
little angel.
May miracle happens. Pray for Adriana.
Bidadari dan ahli
syurga mama, tunggu mama di syurga sayang.
Love,
Mardhia & Adriana.
